European Reference Network
4 weeks ago
European Reference Network (ERN) - RITA / Rare Disease Care Coordinator (Endocrinology) Join to apply for the European Reference Network (ERN) - RITA / Rare Disease Care Coordinator (Endocrinology) role at Beaumont Hospital
Post Title: European Reference Network (ERN) - RITA / Rare Disease Care Coordinator (Endocrinology)
Post Status: Permanent
Department: Medical 2 Directorate
Location: Beaumont Hospital, Dublin 9
Reports to: Directorate Nurse Manager
Salary: Appointment will be made on Clinical Coordinator salary scale (€70,698 - €82,040) at a point in line with Government pay policy.
Hours of work: Full-Time, 35 hours per week
Closing Date: Friday 10th October 2025 @ 12noon
Purpose of the role
The Rare Disease Endo ERN Care Coordinator will have a central role in the coordination of multidisciplinary rare disease care pathways, patient and family rare disease support, advocacy and education.
Responsibilities
Co-ordinate patients' care plans across cross-sectoral specialties and disciplines
Establish and support the development of agreed rare disease referral pathways and processes across both acute and community-based settings
Provide specialist support, information and liaison services to patients/families and carers
Assist in the effective transition from paediatric services to adult services as required
Participate in the development and implementation of rare disease care pathways in collaboration with patient organisations and multidisciplinary stakeholders, and the National Rare Diseases Office (as required)
Actively participate in multidisciplinary team meetings
Qualifications
Mandatory:
Statutory Registration, Professional Qualifications, Experience, etc
Candidates must at the latest date of application:
Be a Health Care professional with a recognised professional qualification in Therapy or Nursing grade
Be entitled to be so registered on an appropriate professional register e.g. CORU, NMBI or other appropriate clinical/professional register
All candidates must have 5 years full time (or equivalent) years post qualification clinical experience of which 4 years full time are preferably in the Endocrinology speciality area (or equivalent) and in a post within the healthcare service, which demonstrates evidence of a management/leadership role in a multidisciplinary/interdisciplinary team.
Desirable Criteria
Experience working in a rare disease or specialist care setting
Recognised postgraduate qualification relevant to role
Demonstrated experience of working in partnership with clinicians, patients and caregivers to improve care outcomes
Experience delivering quality improvement in a healthcare environment
Previous management experience
Experience working in and leading a team in an acute hospital environment
Experience with Microsoft Office Suite, including Outlook
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